I have not been on the site for a while. Firstly I had technical issues which have just been resolved, and thanks to those who helped, but more importantly, and sadly, I have not felt like it as my son, Robert, passed away on April the 9th.
Robert was 31 when he died from pneumonia in Haywards Heath Hospital. He suffered from brittle-bone all his life which restricted him to a wheelchair and meant that his bone structure was too weak to support him. His spine progressively compressed giving his lungs less and less space to work so he was unable to recover from the pneumonia when it struck. Despite his afflictions he was always positive and cheerful and made many friends. He was a regular at Big Jim Sullivan's monthly jazz evenings and a couple of years ago spent a week on a musical workshop with Herbie Flowers.
There are so many good causes all looking for funding and my wife and I are keen to take the opportunity to raise awareness and funding for The Brittle Bone Society, in Robert's memory. His cousin, Naomi, will, very shortly set off on a bike ride from John O'Groats to Landsend. Please take a look at this link and make a small contribution - http://www.justgiving.com/robertdandridge. It really is a worthwhile cause.
Despite his physical limitation's Robert lead an active and independent life living in his own bungalow, working in Ditchling Museum and keeping as fit as possible through swimming. I have posted an album showing him through his 31 years at http://www.facebook.com/profile.php?v=p ... 0570521384
As you will appreciate this has been a very sad and emotional time for my wife and I. We treasure our memories of him but with his passing hope that raising awareness of the brittle bone condition and the work the Brittle Bone Society does will help others who suffer from what can be a very painful condition.
Thank you very much for reading this.
Brian